Comments on: What is MS? https://www.mymsjournals.com/what-is-ms/ Helping people struggling with Multiple Sclerosis and other invisible disabilities Wed, 20 May 2020 13:41:07 +0000 hourly 1 https://wordpress.org/?v=6.5.3 By: Ilona Debattista https://www.mymsjournals.com/what-is-ms/comment-page-1/#comment-61 Wed, 20 May 2020 13:41:07 +0000 https://avada.theme-fusion.com/?p=215#comment-61 In reply to Maria.

Hi Maria, unfortunately, an MS diagnosis is hard to get. It happens with most people and it’s terrible that the people around you or the doctors don’t believe you till they have proof from an MRI or a lumbar puncture. But we battle through it from day 1 and keep doing so every day after that. How are you now? Hope you’re doing well. Keep in touch 🙂 Thanks for reading and for messaging xx

]]>
By: Ilona Debattista https://www.mymsjournals.com/what-is-ms/comment-page-2/#comment-60 Wed, 20 May 2020 12:17:47 +0000 https://avada.theme-fusion.com/?p=215#comment-60 In reply to Anne Marie Darmanin.

Hi AnneMarie, thanks for your message. You learn to accept it yes because in reality we have no other way. You need to try as much as possible to look at the things you can do and focus on the things you’ve already accomplished in spite of your conditions. That must be your driver 🙂 stay well and keep safe !

]]>
By: Anne Marie Darmanin https://www.mymsjournals.com/what-is-ms/comment-page-2/#comment-56 Tue, 19 May 2020 14:44:41 +0000 https://avada.theme-fusion.com/?p=215#comment-56 Thanks for this Ilona… I suffer from ulcerative colitis and arthritis and I can relate to every word you’ve written… I was diagnosed at the age of 23 too and it has been a long journey.. I’m 38 now and I’ve learned to accept it. There are so many things I’d like to do but can’t due to these conditions. But on the other hand I thank God for what I have!

]]>
By: Maria https://www.mymsjournals.com/what-is-ms/comment-page-1/#comment-54 Tue, 19 May 2020 13:43:58 +0000 https://avada.theme-fusion.com/?p=215#comment-54 Thank you for sharing! I have rrms. My first relapse was when i was 18 and no one believed me. I got dxs at 23 too. I can truly understand you.

]]>
By: Ilona Debattista https://www.mymsjournals.com/what-is-ms/comment-page-1/#comment-53 Sun, 17 May 2020 17:58:40 +0000 https://avada.theme-fusion.com/?p=215#comment-53 In reply to Antoinette Spiteri.

Hi Antoinette, I agree that it is 🙂 thank you very much and thank you for reading!

]]>
By: Antoinette Spiteri https://www.mymsjournals.com/what-is-ms/comment-page-1/#comment-52 Sun, 17 May 2020 17:42:05 +0000 https://avada.theme-fusion.com/?p=215#comment-52 Well done Ilona . Sharing your experience with others is within itself therapeutic it makes you more brave and determined. Good luck for your studies

]]>
By: Ilona Debattista https://www.mymsjournals.com/what-is-ms/comment-page-1/#comment-51 Sun, 17 May 2020 16:26:31 +0000 https://avada.theme-fusion.com/?p=215#comment-51 In reply to Michelle Attard Briffa.

Hi Michelle, thanks for reading and for getting in touch. Grief is normal and it’s also very normal that it lasts for years. The diagnosis is comforting yes, but indeed final and that’s where the grief and eventually acceptance comes in. But it isn’t easy to get there. Same way it isn’t easy to live with MS. Travelling with MS is possible but with a difference. When you’re tired you stop. Listen to your body and if that just means being out in the morning when you’re feeling your best then that’s enough. Then you go back to your hotel, you read a book, you relax, you have a cup of tea and you regain your energy for the next day. That’s what I’ve done 🙂 I’m glad you enjoyed reading and I hope that you will read more. Another blog post will be out this week. Keep well and stay safe!

]]>
By: Ilona Debattista https://www.mymsjournals.com/what-is-ms/comment-page-1/#comment-50 Sun, 17 May 2020 16:20:29 +0000 https://avada.theme-fusion.com/?p=215#comment-50 In reply to Daniela D Amato.

Hi Daniela, thanks for reading! The only way they can know is if we tell them. So tell them. Educated them. Explain to them. I know it takes courage, but it takes courage to live with MS, so you definitely have the strength it takes. Keep well!

]]>
By: Michelle Attard Briffa https://www.mymsjournals.com/what-is-ms/comment-page-1/#comment-47 Sun, 17 May 2020 15:47:11 +0000 https://avada.theme-fusion.com/?p=215#comment-47 Thanks for sharing. I was diagnosed with MS on September 2018 and although I have read a lot about it, I think I am still in the grieving process and trying to accept this new me. I am 48, but have had a variety of ailments in the past. Now it’s almost comforting having a diagnosis and a culprit for all the different things you feel, the fatigue, the pain. Yet it also has a finality to it, like there’s no turning back. Sometimes it’s so difficult to describe to others what you feel, because there are days when you feel your old self and can do almost anything. There are other days when just getting out of bed, having a shower and arriving to work on time seems to take all the energy supply you have for that particular day. I love travel, but there are days when I can’t even climb up and down the stairs, due to numbness and balance, that makes me question how my future holidays will be like. Thanks for giving us insight that we are not alone in this and most like us with MS pads through similar moments and feelings. Looking forward to reading more. Take care.

]]>
By: Daniela D Amato https://www.mymsjournals.com/what-is-ms/comment-page-1/#comment-45 Sun, 17 May 2020 03:17:33 +0000 https://avada.theme-fusion.com/?p=215#comment-45 Thanks for sharing and to raise awareness. As you said my people do not know about MS and the struggle of living with it.

]]>