Since March 6th, I’ve been thinking, “How is it, that Multiple Sclerosis, is suddenly a disease that might kill me?”
Living through a pandemic is certainly not something any of us thought we’d live to see and yet, here we are, 2020 and it’s happening. Albeit not being the common flu everyone hoped and wished it to be, from what I’ve understood, Covid19, does not kill you, but complications from it, can. Also, anyone over 65 and, or anyone taking immunosuppressants due to previous health conditions, are also considered “vulnerable” during this time; because in this case, it can kill you as well. Yet, being one of the persons to have received a letter at home from the government, labelling me as “vulnerable” and advising me to stay home, it suddenly feels like its MS that can kill me, because if I didn’t have MS, I would have never received that damn letter at the age of 36.
How angry that makes me. How sad that makes me. Yes. How very sad. When you’re diagnosed with a chronic condition at the age of 23, one of the first things your doctor tells you is, “You don’t die from MS,” as though that statement, was meant to make this painful life-sentence, OK. But now I know they were right in telling me so. Because it was certainly easier knowing that you don’t die from MS, or at least, you didn’t die from MS… up until Covid19. So how sad it is, that right now, I, along with every other person suffering from MS and every other immunocompromised person out there, might actually die because of our pre-existing conditions; conditions that up until 9 weeks ago, did not kill us. Conditions we were living “just fine” with. By just fine I do mean, aches, pains, hospital appointments, psychotherapist appointments, blood tests, routine tests, a few mental break downs, MRI tests, strong treatment, dealing with their side effects and the likes. But hell, right now, all that truly sounds, just fine! That battle, was at the very least, a battle we knew, a battle we fought well and I dare say, were even winning!
As a trainee therapist, I know its ok to be sad and I’m ok with being both angry and sad. It’s a process. It’s called grief. And I also know, its normal to mourn the life I had that I no longer have because I’m locked inside my house, hiding from a deadly virus. Going through the stages of grief is never easy and yet, as an MS sufferer I would think I should be used to it. I have grieved time and time again. Grieved over events I couldn’t attend, grieved over a job I had to leave, grieved over holidays I didn’t go to, grieved over children I couldn’t have. I have grieved; but it never gets easier does it?
The becoming, of a qualified Gestalt psychotherapist, is a dream I’ve had and have worked hard for, for three years now. And yet, the finish line is a milestone that at this very moment seems further away the longer I’m stuck in here and that, makes this grief, that much harder. But then I stop, I go to therapy, I think and process and I am aware that beyond the sadness that comes knocking in waves, I must stay with what is and I know, that despite the hurdles that 2020 has thrown our way, I cannot give up, because becoming a warranted Psychotherapist is more than just a dream. It’s part of my mission to help others, who like me, are struggling with their mental health because of their physical health. So, I know, that Covid19 will not take this away from me. It might delay it, it might mean getting creative and adjusting my plans, but it’s not taking it away. So, if I must stay home for now in order to get to that finish line, then home I shall stay for as long as it takes and likewise, I beg each and every one of you struggling with being “vulnerable” reading this, to do the same. You might notice, I don’t sit very comfortably with this term we’ve been given, but whilst we might really be vulnerable to this virus, this new Corona Virus will not win because we won’t let it.
If you had hopes and dreams and plans that seem to have been jolted because of Covid19, if you feel your ground has been shaken so badly you can’t even tell which side is up. Hang in there. Stop. Truly, stop for a second. Breathe. Ground yourself, and despite it all, look around you, you’re safe, you’re ok and know, that this too shall pass. Focus on what you can control, and that, right now, is staying home. So stay home, wait, stay safe till it does pass and prepare to fight harder for those dreams and plans you had 9 weeks ago. Stay strong for them. Stay healthy for them, you have to, because we are warriors and warriors fight, it’s what we do and we do it well, so we sure as hell aren’t about to stop fighting now!
I end this today with a short note for those not considered “vulnerable” but are still reading this. Please, do stay home too if you can and stay safe if you can’t, practice social distancing, because in so doing, you help not only yourself, but each and every “vulnerable” wife, husband, mother or father, son or daughter, sister or brother out there, stay safe too. Remember each “vulnerable” person, is someone very important to someone else, possibly, someone else’s everything. So be considerate, be kind, be respectful. The only way we can do this is if we do it together. Together, we are stronger as a nation, as human beings, those vulnerable and the ones a little less so.
So proud and grateful to have a warrior friend like you Ilona. Reading you is a breath of life and energy!!!
Thank you David xx
“…I have grieved; but it never gets easier does it?” This resonated with me the most. People try to make you forget or think you’re over it. But it’s disrespectful to assume that. Loved your post!
Remember this though; they try and make you forget because it’s hard for them to accept. It has nothing to do with you but a lot to do with them. So don’t let them get to you. Thank you 🙂 xx
Wow thank you so much for this .Reading it made me feel not so alone and that hey I’m not alone ,someone knows my struggles everyday. Thank you so much
Hi Kylie, I’m so glad you’re telling me this! This is exactly why I wanted to write this blog. Because I was you, and still am. But no we aren’t alone and like me and you, there are many others, so we should reach out to each other! I hope you keep following my blogs. More out soon! 🙂 Keep well xx
Your words mean a lot.
I have been diagnosed with MS at the age of 24.
Its not easy to live with it, knowing that ppl and even your friends do not undertsand what it is and how it makes you vulnerable.
Hi Roxanne, it is in fact the hardest part of MS I think. Even harder than the aches and pains and the physical struggles, is how misunderstood we all are. So we need to try and change that. If we can’t change it by explaining to our loved ones, we can chance it by reaching out to each other. 🙂 Stay safe! Keep in touch. I see you. I understand. xxx
Well done, Ilona! I too belong to the “warriors”, the ones fighting fibromyalgia, a condition I had no idea I was struggling with until a few months ago. And then things became clearer. Shocking at first, but clear, the enemy had been disclosed. And now I am taking it day by day, week by week, like you and anyone else like us. Also well done to your husband and loved ones who support you, this is a struggle for them too. I see it with my family and how it impacted them, too, and their life, too. Please send Ryan… Read more »
Hi Alina, Ryan sends his regards 🙂 I’m sorry about your recent diagnosis. I’m sure it isn’t easy, however, like you said, somewhat relieving. Because now you know and you can start battling something that has a name. Sadly Fibro is still very much misunderstood by both the medical community as well as society, so I know that it’s a struggle. But reach out. Yes, it might be a struggle for your family too, but reach out to them anyway. It’s important not to isolate yourself. I’d be happy to know you’re following my blog and please do keep in… Read more »
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